KOL Video Series

#LIVEwithPF #BREATHE #BreatheSupport #IPFRaremark 💙💚

We started off our 8 week KOL (Key Opinion
Leader) video series with Dr. Naftali Kaminski
and his "message of hope".  We at the Breathe Support Network and Raremark, as well as all
our amazing KOL's, truly hope you have found
this video series valuable.

If you missed any of the videos, they can all
be found at the link below.

Please also follow more about IPF
from Raremark here.

Today we officially sign off by hearing from
Dr. Kaminski again, reiterating why we need
to remain hopeful.

7/18/2020

A Message of Hope for the Future of IPF Treatment

Naftali Kaminski, MD, Chief of Pulmonary, Critical Care and Sleep Medicine at Yale School of Medicine explains to us "The first drug is never perfect, the next one is better, the next one is better. We now have multiple clinical trials..now there are multiple companies doing drug studies so I think there is a lot of hope."

To view previously posted KOL videos, click here.

The Breathe Support Network, established in June 2011, has become a premier online pulmonary fibrosis support network on the Facebook groups platform. 

 

As a volunteer only organization, we enable patients and their loved ones to enjoy a better quality of life on the PF journey through peer to peer support, education and advocacy. 

 

The Breathe Support Network (currently represented in 99 countries) is available worldwide for anyone on the PF journey, as well as those interested in learning more about pulmonary fibrosis.

Our peer-to-peer support is for PF patients and loved ones in all stages of the disease process. 

 

The Breathe Support Network groups are FREE to everyone.  A membership fee is not required to join.  Our support groups are private.  What you post in the groups stays within the groups.  With 7 groups in our network, we have a group that is the right fit for you.

Because we are an online network, our doors are always open.  24 hours a day, 365 days a year, you can find support.

You may sign up for our mailing list in the box to the right.  This list is for future communication in the event of a Facebook outage.  Your private information will never be sold or distributed in any way.

Thank you from your Breathe Support Network team!

Our network is GROWING!

Check out the NEW support group for PATIENTS

diagnosed

UNDER age 40.

Click the SUPPORT GROUPS tab

for more information.

  • Facebook - Black Circle
  • Twitter - Black Circle

To learn more about how Breathe Support Network got started and to read testimonials, click here.

We are always here to answer your questions or address your concerns.

Please click here to contact us.

Your privacy is important to us.

Click here to learn more

Prepared by: Taleena Koch - Pulmonary Fibrosis Advocate for Patients and Families

Breathe Support Network

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